FranceCoag Network: Care for Patients with Inherited Bleeding Disorders. An Update for 2014

This new brochure aims to outline the diagnostic criteria for patients with inherited coagulation protein deficiencies (ICPD), current treatment practices, and recent developments in this field. This analysis was made possible by data collected through the FranceCoag Network (RFC). It consists of two parts: the first focuses on patients with HCPs other than hemophilia (von Willebrand disease, deficiencies in Factor I (FI), FII, FV, FVII, FX, FXI, FXIII, Leiden FIX, and combined FV and FVIII deficiency), who represent approximately 24% of the population studied in the RFC; and a second part dedicated to patients with hemophilia. We extend our heartfelt thanks to every participant in the RFC project, without whom these results—the first of their kind in France on the epidemiology of rare bleeding disorders—could not have been presented.

Publishing year: 2015

Pages: 6 p.

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